November 27, 2009 (Post Thanksgiving)

November 28, 2009 mommytoabpluskb

Well, I survived the first holiday without my daughter and I hope and pray this will be the last holiday without her with us at home. I cried a lot, and drank for the first time in a year and 1/2 and that’s how I got through it. And plus my family was there with me.

Parag and I spend the whole Thanksgiving morning with her while mom came here and began cooking the Thanksgiving dinner.

The night before, we found out that Kiran was vomiting blood. When we came in, I cried, I lost it. It made me so sad to see her back on IV’s and TPN when she has just come of it the day before and she was again NPO.

While we were there, the doctor decided to begin giving her food since she had stopped vomiting and he figured that it was from her severe acid reflux and to give her zantac and reglan again. They started her on 10cc’s. After the next feeding, she continued to scream, so the doctor was sitting close to her at the desk, and he said ok, give her more. And she passed right out after more food. Those two meds were stopped when the TPN was stopped the day before to “test” her. Obviously her tummy is not ready to be tested without reflux medication. All she did was scream almost the whole time we were with her. Then when she was allowed the 10cc’s of her old formula Neocate, she was in heaven. She could have eaten more, but she is so sensitive that feeds have to start back slowly with her.

Today, she had her favorite nurse Marguerite and she brought in a dresser for her clothes and a TV that plays videotapes like Cinderella and Lion King. Wasn’t that the sweetest thing to do? So take a look at her set up. I told Marguerite that if she keeps doing this Kiran won’t want to go home. I brought in some nice turkey day leftovers for her lunch and she really appreciated it.

This morning mom and I went in the morning to see Kiran and she looked much better, just really skinny. She is now under 5 pounds and 20 inches long! The doctor is considering her malnourished since she doesn’t have any fat to keep her warm enough. So she is still under the warmer almost all the time. When she comes out to eat, she is wrapped in at least two blankets.

The first movie she watched was Lion King.

This afternoon all 3 of us went to the park and had a great time. I ran a bunch chasing after Alex on her two wheel bike. Wow, she’s fast!

Then we went to the hospital and Alex got to peak in the window and see her sister for the first time in a couple of months, since the NICU changed the rules. Marguerite disconnected Kiran from her monitors for a few minutes and brought her over to the window. It was a beautiful moment in time. Kiran was wrapped in a blanket and her hand was up as if to say “hi, I’m here sis”.

Also, the TPN and IV’s were all stopped today and I hope this will be the last time she needs any of that if she keeps tolerating her feeds.

I just keep praying that she starts putting weight on soon and she can come home. I feel like I’ve missed the first 3 months of her life and I don’t want to miss much more. I am asking the nurses to take pictures when they can when Kiran does something cute or funny because I can’t stand missing anything else. Marguerite took a cute one of her today watching a movie for the first time ever and it was adorable.

So, we are hanging in there and just waiting for that day. Please continue your prayers for her also. Thank you!

Here are some new pics: